tag:blogger.com,1999:blog-7513470670765405287.post6181621623766174958..comments2024-02-28T01:43:54.906-08:00Comments on Terry Tyler: A Bad Train Day, and a spark or two within the fog of #Alzheimer'sTerry Tylerhttp://www.blogger.com/profile/15077413235902203848noreply@blogger.comBlogger29125tag:blogger.com,1999:blog-7513470670765405287.post-45538350427021316052018-09-28T02:12:01.602-07:002018-09-28T02:12:01.602-07:00Thanks for reading, Kerrie, and for your kind word...Thanks for reading, Kerrie, and for your kind words! xTerry Tylerhttps://www.blogger.com/profile/15077413235902203848noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-26787748143878549262018-09-27T13:23:59.562-07:002018-09-27T13:23:59.562-07:00Lovely post and it is great to think your visits m...Lovely post and it is great to think your visits make a difference so many people give up you sound like a lovely familykerriehttps://www.blogger.com/profile/05013226271426913979noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-41183797732942473812018-09-27T04:44:59.967-07:002018-09-27T04:44:59.967-07:00Oh, I do so much, Linda - especially as Dad died l...Oh, I do so much, Linda - especially as Dad died last year. Those tiny moments of recognition are all we have left now! As for the trains, I don't drive so it's my only option. Sometimes fine, sometimes a nightmare!!Terry Tylerhttps://www.blogger.com/profile/15077413235902203848noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-58537779497372447292018-09-27T02:26:10.338-07:002018-09-27T02:26:10.338-07:00I travelled from Luton to Leeds by train this summ...I travelled from Luton to Leeds by train this summer. Never, ever again. But I can relate to the dementia. My mum was at the start of her journey with it when she died of complications after a hip fracture; I often wonder if it was a blessing - or not. Hold on tight to the moments you have with your mum still.Lindahttps://www.blogger.com/profile/08566640127922513255noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-74199598496193782018-09-05T04:43:34.264-07:002018-09-05T04:43:34.264-07:00Thanks so much, Ruth xxThanks so much, Ruth xxTerry Tylerhttps://www.blogger.com/profile/15077413235902203848noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-56368690367689083542018-09-02T08:11:49.363-07:002018-09-02T08:11:49.363-07:00Your words brought tears to my eyes. And the photo...Your words brought tears to my eyes. And the photo of you with your mum is just lovely. Precious.Ruth Daly Authorhttps://www.blogger.com/profile/00153398099673661498noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-87252730222608268752018-09-02T04:22:29.365-07:002018-09-02T04:22:29.365-07:00Thank you for your kind words, Cathy xxThank you for your kind words, Cathy xxTerry Tylerhttps://www.blogger.com/profile/15077413235902203848noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-23402854244373003602018-09-02T04:22:11.169-07:002018-09-02T04:22:11.169-07:00Thanks for reading - and yes, she is. Wonderful p...Thanks for reading - and yes, she is. Wonderful people who do this stuff!Terry Tylerhttps://www.blogger.com/profile/15077413235902203848noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-27303937739297439932018-08-30T07:07:21.935-07:002018-08-30T07:07:21.935-07:00Train journeys can be hell sometimes and people so...Train journeys can be hell sometimes and people so ignorant. The photos are lovely, my mum had Alzheimer’s and I so agree with Julia’s comment about a photo bringing to mind the person at their best. A very beautiful, poignant post which I can totally relate to.BetweenTheLineshttps://www.blogger.com/profile/13450847064064068248noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-91468432478456528612018-08-29T03:52:35.433-07:002018-08-29T03:52:35.433-07:00Thanks for that Terry, really interesting and movi...Thanks for that Terry, really interesting and moving. And it's so good that your mother is clearly contented and has nice people looking after her.Anonymoushttps://www.blogger.com/profile/11843865120538790841noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-5868015431542358962018-08-28T05:09:43.868-07:002018-08-28T05:09:43.868-07:00Oh yes, it's the perfect photo of her! So she...Oh yes, it's the perfect photo of her! So she was 75 - about 6 years before it started. You iz so right about what you said in the last sentence. Terry Tylerhttps://www.blogger.com/profile/15077413235902203848noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-54271820220146199662018-08-28T05:08:29.670-07:002018-08-28T05:08:29.670-07:00That sounds about right - the 80s, when 'me fi...That sounds about right - the 80s, when 'me first' took over from the hippie 60s and 70s! <br /><br />Dad used to go to see Mum twice a week, and he said he was always surprised by how few people had visitors, ever. I've hardly ever seen anyone visiting, either. It's such a shame; I am sure the fact that we all go as regularly as we can is one of the reasons why Mum is still functioning reasonably well. My brother goes once a week, still, but it's harder for Julia and me.Terry Tylerhttps://www.blogger.com/profile/15077413235902203848noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-39648691635436826342018-08-28T05:02:03.406-07:002018-08-28T05:02:03.406-07:00Ah, serves me right for refusing to drive, G!! Ye...Ah, serves me right for refusing to drive, G!! Yes - that smell thing was so obvious I don't know why it didn't occur to me before. She often stares at us for a while before her face softens up and we can see she remembers us - maybe it's a combination of many things. Terry Tylerhttps://www.blogger.com/profile/15077413235902203848noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-76655976139264392542018-08-28T04:59:57.825-07:002018-08-28T04:59:57.825-07:00Thanks for reading, Linda... it's hard, isn...Thanks for reading, Linda... it's hard, isn't it, but it's not all sad. As for those trains....!!Terry Tylerhttps://www.blogger.com/profile/15077413235902203848noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-40421123935103023672018-08-28T04:59:14.047-07:002018-08-28T04:59:14.047-07:00Absolutely, Anne - so glad things are better for y...Absolutely, Anne - so glad things are better for you now. I'd love to be able to see Mum more often, but she's 250 miles away from me. And yes, you're so right - every time I see one of those little sparks that is 'my mum', it's a moment to treasure. I will seek out your blog! Thanks so much for reading and commenting :)Terry Tylerhttps://www.blogger.com/profile/15077413235902203848noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-45617059456925917902018-08-28T04:56:39.124-07:002018-08-28T04:56:39.124-07:00Thanks so much for reading, Hilary! Yes, Mum does ...Thanks so much for reading, Hilary! Yes, Mum does seem to still like music - it was nice to see her enjoying it that day. xTerry Tylerhttps://www.blogger.com/profile/15077413235902203848noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-23413807739170313402018-08-28T04:55:50.009-07:002018-08-28T04:55:50.009-07:00Thanks, Machel - yes, it's such a lovely pic, ...Thanks, Machel - yes, it's such a lovely pic, isn't it?!Terry Tylerhttps://www.blogger.com/profile/15077413235902203848noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-40705407641310113132018-08-28T01:26:05.646-07:002018-08-28T01:26:05.646-07:00I love the pics of the people riding on the tops o...I love the pics of the people riding on the tops of trains and clinging on to the doors - feels like that sometimes! And that lovely pic I took of Mum was the last one, just to finish up the film (which dates it in itself) in summer 2001. I'm so glad I took it. You never know when you're taking that photo that one day is going to define how you remember the person best. Julia Gibbshttps://www.blogger.com/profile/04329377424036314411noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-47669119446433343332018-08-28T01:16:08.287-07:002018-08-28T01:16:08.287-07:00It's a long time since I was on a train, Terry...It's a long time since I was on a train, Terry, but I do remember the first quiet hour from home to Swansea being as peaceful as your first journey and then the chaos and free-for-all and aggressive rudeness as more and more people got on the train to travel to Cardiff. It's a "me before you" that comes out on the road with drivers - makes me both angry and sad. I never discuss politics on social media but, thinking back, this started in the eighties. But it is the latter part of your post, which is so beautifully written that both gives me hope for us as a society; that there are people who still care for the vulnerable with love, and there are still families who love, whatever the circumstances. Your words brought back so many memories. Thank you. https://www.judithbarrow-author.co.uk/https://www.blogger.com/profile/11916706180945300075noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-77006567019308886782018-08-28T00:02:58.216-07:002018-08-28T00:02:58.216-07:00I’m sorry for your dreadful train journeys, T. How...I’m sorry for your dreadful train journeys, T. How can people be so rude and inconsiderate? But I love these photos of your mum, especially that one of you and your mum, that’s really precious. Interesting about the memory and smell link too, it makes perfect sense.Georgia Rosehttps://www.blogger.com/profile/08617952846902258246noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-52165899015471105722018-08-27T23:52:01.532-07:002018-08-27T23:52:01.532-07:00Trains - it's a reminder why I use them so inf...Trains - it's a reminder why I use them so infrequently.<br /><br />Your Mum - many thanks for writing about her so candidly. It brought back a lot of memories. Linda Acasterhttps://www.blogger.com/profile/03096791092366530129noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-80760388126734038482018-08-27T23:18:37.876-07:002018-08-27T23:18:37.876-07:00Thank you Terry! My dad has Alzheimer's and a...Thank you Terry! My dad has Alzheimer's and at 93 has recently moved into residential care near me and I can now see him regularly. Previously he was 200 miles away at home with a care package and I did a lot of to and fro-ing and your lovely blog reninded me of how nice it is to have him near, now. I used to blog regularly about caring and his dementia (Some posts are on the Dementia Day-to-Day website that also shares other people's experience of dementia and is supported by the Institute of Mental Health) and wonder if I should return to the topic - I find it incredible how much of 'him' remains despite the complete loss of reason and memory. Thank you. Anne de GruchyAnne de Gruchyhttps://www.blogger.com/profile/06342037213654338571noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-3625077287103833212018-08-27T16:57:39.416-07:002018-08-27T16:57:39.416-07:00Hi Terry - lovely post with your reminiscences ......Hi Terry - lovely post with your reminiscences ... it's wonderful your mother was able to join in with occasional things and then you all become happy and relaxed. Music certainly helps so many illnesses - strokes too ... as Alzheimers ... love the photos you've given us. English trains and people ... not easy to say the least ... cheers HilaryHilary Melton-Butcherhttps://www.blogger.com/profile/17596532480645510678noreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-39000337767278686062018-08-27T15:36:53.462-07:002018-08-27T15:36:53.462-07:00My gosh, Terry...what a beautiful write. Tears. I ...My gosh, Terry...what a beautiful write. Tears. I am so glad I took time to read. Such a lovely photo of you and your beloved, MommaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7513470670765405287.post-50539136215732675192018-08-27T14:18:28.834-07:002018-08-27T14:18:28.834-07:00Terry, I can so relate to your train travel highs ...Terry, I can so relate to your train travel highs and lows. I use the trains quite a lot here in NL and I am constantly in awe of how inconsiderate people can be in their general 'I'm alright, Jack' attitude to everyone else's discomfort. The photos of you with your mum and your moving stories touched me too. My dad didn't have Alzheimer's as such, but his condition in his last years was similar. Seeing him smile, or become fleetingly lucid was like seeing the sun break through the clouds. It's so important that they have visitors and it's lovely that you and Julia go together. A beautiful post, my dear!Vallypeehttps://www.blogger.com/profile/08309284606572565277noreply@blogger.com